When
I learned my breast cancer treatment would require a mastectomy, my
process for choosing a reconstruction technique and surgeon was one
hundred percent wrong! But geez, what did I know? Plus, I
was in shock mode. And I was also in do-whatever-the- doctor-tells-me
mode. I've
previously written, been written about and spoken of the reconstruction road I stumbled along. htttp://www.cnn.com/2009/HEALTH/10/24/breast.cancer.options/index.html#cnnSTCText
My breast
reconstruction experiences – good and bad – turned me into an
activist. A reluctant activist, since I'd kept the whole breast
cancer thing hush-hush for a long time, even from my own mother. But later I was so appalled at my own ignorance (I have always taken pride in
being an intelligent, well-informed woman) that I wanted to help spare
other women my own naivety and poor choices that easily might have
landed me in a very deep pothole.
Since
then, I've heard stories from countless other women who also made
reconstruction decisions under pressure, with little information, and
with little reason to doubt the doctors they trusted. Most of them
weren't saved by a last minute quirk of fate, like I was. Many, after
suffering from choices based on incomplete or inaccurate
information, got another chance at reconstruction to correct issues caused by their initial surgeries. Unfortunately for some, the damage
from surgeons with inadequate experience or using outmoded
techniques, left them with problems that can never be repaired.
Study
up on current methods of breast reconstruction before you make your
choice, especially if that choice is irreversible, like one that
compromises muscles in your body. Don't rely only on the advice of
the plastic surgeon who happens to live in your area. Like it or not,
he/she has a vested interest in your choosing him/her as your surgeon
and, ergo, the reconstructive technique in which they happened to be trained.
After
you select your preferred method of reconstruction, seek the opinions
of several surgeons certified by the American Board of Plastic
Surgery who have extensive experience in
those procedures.
Not only will you increase your probability of successful
results, but you'll also reduce the likelihood they may discourage
you from your choice or mistakenly believe you're not a candidate
for that surgery. Ask about their success rate and how many of the
procedures they have performed. Highly experienced doctors who
specialize in the reconstruction you want will give you the best
evaluation of your unique situation.
Be
assertive. Ask all the questions you need to make an
informed opinion. Many people feel intimidated by doctors and are
hesitant to ask too many questions. If you're like this, get over it now! Make a list beforehand, bring someone with you and give them a copy, too.
They can help you if your courage flags or you feel
overwhelmed, as well as provide another brain to process what you're told. Write down the answers to
your questions and check off each, only after you're satisfied with the response.
Ask
to view before and after photos of the surgeons' work. Since these
photos are usually taken within a few months of surgery, be aware
that scars and areola tattoos will appear much more prominent than
they will be after more time has passed. Instead, focus on the shape
of the breasts, symmetry, and the artistry of the surgeon.
Ask
for patient references. Many women are happy to talk to others about
what to expect and may even offer to show you their results in
person. The most experienced surgeons usually have patients who
volunteer to mentor newly-diagnosed women as a way to give back after
successful treatment and reconstruction.
Surgical oncologists are specially trained in removing cancerous tissues, although your mastectomy surgery may be performed by a breast surgeon or general surgeon. The surgeon removing the cancer should work in cooperation with the plastic surgeon you choose. If there is a breast diagnostic center in your area, it may have a list of surgeons and will schedule consultations for you.
If
there is not a surgeon in your area experienced with the reconstruction method you
prefer, know that many women travel to access surgeons who are. Their
clinics may help with travel arrangements, as well
as dealing directly with insurance companies regarding out-of-network
patients. Preliminary consultations can occur by phone, and openings in surgical schedules are maintained for women needing surgery in a timely manner. Some cities offer low or no-cost accommodations for cancer patients, as do some airlines.
Good luck, and may your road to new breasts be well-paved!
(A special thank you to Sandy Keller, a co-founder of Breastoration, who contributed to this post.)
How lovely are the feet of them who brings good news! Well Done EVE.
ReplyDeleteKathy Meyers
Great blog, Eve, and lovely pictures too! How fortunate I was to have had the best surgeons in my home town where I grew up and lived within 40 miles all my life. I was also fortunate to have been informed by all my doctors of my options from the beginning and even before I had the breast cancer diagnosis.
ReplyDeleteThank you for the great tips. It is so true that it is imperative to make good choices and to choose the right doctor.
ReplyDelete